Giving Back - Introducing our PLANE SURVIVOR Diamond Sponsorship Program

R Craig Blume

Posted on October 20 2019

Giving Back - Introducing our PLANE SURVIVOR Diamond Sponsorship Program

Let’s make a real difference together!   Please help us raise $1 million dollars to fund the research for the CURE of Charcot Marie Tooth Disease (CMT).   Charcot Marie Tooth Disease (CMT) affects 2.8 million of us in our world today.    Introducing the Baltimore Biker Trading Company’s PLANE SURVIVOR Diamond Sponsorship Program.  We have partnered with our friend Steve O’Donnell and the CMTA to bring you a phenomenal way to MAKE THIS HAPPEN TOGETHER.    We’re donating $5.00 for EVERY Plane Survivor CMT T-Shirt sold to fund the research for the CURE.   Our goal of raising $1 million by December 31st, 2019 will be made possible by selling 200,000 Plane SURVIVOR CMT T-shirts!

Want to know where your donations are going and see how your gift is truly making a difference?  

 Here’s where our donations are making a difference for Research:

  • Testing of a novel anti-inflammatory approach to treat CMT1X - Rudolf Martini (University of Wurzburg, Germany)
  • Evaluation of a potential CMT1X Gene Therapy Approach - Kleopa Kleopas (University of Cyprus)
  • Characterization of cellular trafficking defects caused by some CMT1X mutations - Steven Scherer (University of Pennsylvania) & Charles Abrams (University of Illinois-Chicago)
  • Production and characterization of Gjb1-/Y//Sarm1-/-mice - Steven Scherer (University of Pennsylvania)
  • CMTA strategy to create new mouse models of CMT1X for use in therapy evaluation - Mark Scheideler (HumanFirst Therapeutics LLC); PscyhoGenics Inc.; European Mutant Mouse Archive
  • Acceleron Alliance to promote evaluation of a muscle-sparing therapy in CMT patients - Mark Scheideler (HumanFirst Therapeutics LLC)

Here’s where our donations are making a difference for Drug Discovery and Development - Therapies for Inherited Neuropathy:

  • Development of a Novel Biological Therapy for CMT1X - Mark Scheideler (HumanFirst Therapeutics LLC), E. Richard Stanley (Albert Einstein College of Medicine), Rudolf Martini (University of Wurzburg, Germany), Jonathan Lai (Albert Einstein College of Medicine)
  • Production of the human disease-causing factor for use in development of a biological therapy - Richard Stanley (Albert Einstein College of Medicine)
  • Production of a CMT1X mouse model expressing the human disease-causing factor - Rudolf Martini (University of Wurzburg, Germany)

Here’s where our donations are making a difference for other TIN-Sponsored efforts to develop treatments for CMT1X:

  • Testing of Fingolimod (Gilenya) for its ability to ameliorate CMT1X - Rudolf Martini (University of Wurzburg, Germany)
  • Exercise as Rehabilitation Therapy for CMT1X - Rudolf Martini (University of Wurzburg, Germany)

Lastly…  Here’s our Plane Simple heartfelt request… how YOU can truly make a difference:

  • Help us sell 200,000 Plane Survivor CMT T-Shirts and we’ll DONATE $1 million to the CMTA.

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